Sickle Cell Disease Resources of Northcentral PA

Sickle Cell Resources of Northcentral PA is working in 11 Pennsylvania counties to identify and provide services to individuals with Sickle Cell Disease or Sickle Cell Trait. 

The primary goal is to achieve the highest quality of life for as many people with Sickle Cell Disease as possible. Sickle Cell Resources of Northcentral PA works directly with individuals to help them gain full participation in services that are available to them. We assist to identify any barriers to participation and determine what we can do to eliminate those barriers.

Additionally, SCDR is actively engaged in establishing a collaborative network of providers of medical, social and ancillary services in the community to enhance the network of care provided to families affected by Sickle Cell Disease. We work closely with the primary care physicians and treatment providers to ensure smooth and efficient coordination of care in order to maximize positive outcomes for patients.

Each individual plays an active role in planning and deciding which areas of participation meet their specific needs and our services are then individualized for each client. This is a FREE service to individuals with Sickle Cell Disease or Trait funded by a Grant from the PA Dept of Health.

Services Provided to Identified Clients

•  Referrals for genetic counseling

•  Referrals for sickle cell testing

•  Comprehensive case management

•  Vocational counseling

•  Help locating needed services   

•  Provision of transportation services

•  Educational programs for schools, businesses, civic or church groups              

•  Comprehensive community awareness programs

•  Assistance with health insurance issues             

•  Identification of and introduction to support groups

•   Home visits      

Education for Person with Sickle Cell Disease and Their Families

• Individual one on one counseling

• Community center awareness presentations

• Correspondence                                                          

• Family support

Collaboration with Tertiary Centers and Primary Physicians

• Accompany patients to office visits                                            

• Ongoing education about the disease process

• Coordinate and facilitate follow through of prescribed care